24 Comments

Kyrie, this is such a courageous, grounded piece. I'm so sorry you were let down so often by the effed up medical system. Sending love and prayers that 2024 will be so, so much better.

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Jan 13Liked by Kyrie

Thank you for everything you write—the humor, and about this incredibly tough situation. Sending love and support.

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Trying to find the funny in a situation like this takes courage. It sounds like you have that in abundance. It also sounds like you've encountered many donkey-ish doctors, but I hope a few get your humor. The way a body can go full betrayal on its owner is absurd, after all. Doctors need to work on their jokes.

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What a couple of years you’ve had and thanks so much for sharing what you’ve been going through. Sending love ❤️

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Sending hugs, Kyrie. So many hugs. Healing hugs, funny hugs, loving hugs.

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Oh hi Kyrie! I’m so sorry to know what you’re going through. But I’m sure you’ll put every inch of cancer into Jane Austen’s Wastebasket while Guffawing your way through it. We’ll that was a lame way to make you laugh. But it’s so difficult to hear this! Take care and I wish you all the best with your health. Take care! Loads of good health to you ❤️

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I am so sorry to hear your story. Where did we ever get the quaint idea that doctors are gods? I hope you continue looking for the funny and I hope you find it. It may be the strongest antidote at your command.

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Kyrie, it was an excellent, eloquent, and yes, funny post. It’s mind-blogging how incompetent our healthcare system is given how much extra we pay compared to the rest of the world. I’m convinced our healthcare system is one big wealth extraction machine and the people who get into medicine don’t intend for it to be, but administration makes it that way.

I too had a similar, albeit much, much more mild false negative experience in recent years. I thought I had sleep apnea. Took a test in 2021, came back negative. All good. But over the past 2.5 years, my daily exhaustion, my physical aches, my headaches, my body has all gotten worse. I caught Bird Flu in 2020 and that can leave you with narcolepsy, so doctors were taking about that. Then we started thinking Long COVID or ME/CFS. A few years go by and I woke up in the middle of the night gasping for air a couple weeks ago. I checked the statistics at the NIH and found sleep study error rates are nearly 1 in 5. For how much we pay? That’s insane.

Two and a half years cutting through all the red tape only to wind up right where I started—sleep apnea—all thanks to a false negative. It’s an absolute mess and I don’t envy you for having to navigate it going forward.

I’m so sorry to hear what you’re going through. Sincerely. I’m here if you need to reach out privately and I’ll be looking forward to more updates and posts.

I went to Greece last year and medical treatment was quick, easy, and affordable. $50 to see a specialist, psychiatrist, neurologist (I was thinking CFS at the time), didn’t matter. I was also able to schedule all my appointments same-day: no wait times. Medication for sleep cost me $1.90 instead of the $88.40 it costs in America.

The whole system was simplified.

I’m not sure if this might be an option for you but it was extremely helpful for me, so I figured I’d throw it out there just in case it gets any of the wheels turning. I can’t figure out why I’ll ever pay more money for more incompetence again.

Kick ass and keep publishing.

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Hey there Kyrie. Thank you for sharing. I am so sorry to hear what you went through to get diagnosed and of course so sorry that you got the bastard cancer.

No matter how many times I hear it I cannot believe how fucked your health system is.

I wish you all the very best with getting that book written and published.

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Jan 15Liked by Kyrie

COLD mittens?? What are ya-- crazy?? Put 'em by the woodstove for 10 minutes before you put 'em on-- that's what I do 'cause I'm SMART... 💪🤓

OK, now that we've got THAT outta the way... We knew you were courageous because you publish a humor mag-- what takes guts in this somber, oh-so-serious world. But a cancer survivor who's been thru the mill?? Jeez, even the Cowardly Lion wasn't willing to go THAT far... 🦁👎

Heard an interesting homily this morning-- about vocations. How we all have them, and how they morph and change at different stages of our lives. And how they're best viewed as ADVENTURES. Which jibes with your attitude, I think, at least on some level.

Glad you spilled the traumatic beans so I can put you on my prayer list. Maybe you'll think that's funny. But you'll be on there from now on-- so I guess the joke's on you. Hang in there. 👍💪🙏😊

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The lack of appointments without referrals is upsetting. It is important that you wrote about this. The post was eloquent. If it has not been edited much after posting, then it was always eloquent.

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I'm so sorry you've been going through this, and am sending my best possible wishes for some heartening results from your next scans. <3

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Kyrie: I too had the pleasure of chemo infusions back in 2018, so you have my sympathy and best prayers and wishes. It takes a strong person to get through all that, so go ahead and congratulate yourself on being one of those strong people. I've been reading your work since prehistoric times and have always admired you. Please get well and stay away from doctors and hospitals as much as you can. A whole lotta people you don't know, including me, love you!

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I’m so sorry to read all this. I hope you only get good reports here on out! Our “healthcare” system is a misnomer. And yes, if men had to get their testicles pancaked once a year I’m sure they’d find a better way.

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